John Wesley and twin brother Jason William born at only 25 weeks weighing a pound and a half each were with us for only 17 days. They both suffered grade 4 brain bleeds and we were advised by the hospital that they had “NO” chance and the best thing for them would be to remove them from life support. We did as they advised fearing that a short life of horrible pain would be no life. We truly regret the decision as we now know we were lied to by the hospital, and have met children who have suffered grade 4 brain bleeds born as micro preemies living a normal life, one being my step sister who I had barely known until after this happened, and her son. She helped me understand a lot after spending 9 months in the hospital with Miles also born weighing a pound and a half and suffering a grade 4 brain bleed. He is now 10 and doing awesome.
The choice although was not heartless, on the day the babies were born their paternal grandmother was laid to rest having passed after losing her fight with cancer. Their maternal grandmother also lost her fight with cancer 5 years earlier along with their great grandmother who also fought cancer. And one month later great grandmother Rosie passed after a fight with cancer. Not to mention the family that we have lost through nature.
The babies were the product of many wonderful people all having special skills, talents and personalities. They missed their chance to show the world how amazing they were.